Well my spell at the wonderful St Christophers Hospice had to come to an end! Fortunately I did not leave there in a coffin, Rosalind collected me in our car. What was achieved at SCH whilst I was there?
- I learnt how kind and caring and professional the staff at St Christopher's are and the wonderful resources they have.
- They improved my pain control and taught me more on how to manage it. They progressed me from tablets to syringe driver and finally onto patches.
- Eventually they got me eating most of the time without vomiting. And I learnt to avoid bending low after eating, to put slippers on, if I wanted to keep my stomach contents in my stomach!
- They freed up my internal plumbing so my waste disposal system is working.
- The physio showed me that a very gentle massage can be a pleasant experience and then she showed Rosalind how to do it.
I feel I made a lot of friends there and I was sad to leave them. They had spoilt me rotten! They gave me 5-star treatment, Well I ask you where else are you going to get at 3am for free, a top up dose of pain relief medicine followed by one of the following:-
- A cup of Horlics with biscuits or
- A glass of apples juice with biscuits or
- A small tub of ice cream or
- A slice of toast with butter and marmalade
Yes it was like being on cloud nine in heaven or the garden of Eden.
After a bumpy drive home (I think the local government bodies are letting the roads deteriorate so our friends from Eastern Europe feel more at home), we arrived at No 5! My first move was to go out the back door to see how the garden was, this turned out to be a bad move! Bending down to put on my gardening shoes set off a bout of vomiting and I fertilised several flower beds! It will be interesting to see what the results are. Maybe I could transform the whole horticultural scene! Anyway I staggered down the garden frightening Eudeen, our next door neighbor, who was putting the finishing touches to the wonderful landscaping she has had done. She kindly offered to get me back to the house but I managed on my own and crawled into bed.
Later that day our friends from the Church's Self-Reliance Centre, the Baxter's came to visit after a horrendous drive out of London. They arrived just in time for dinner, but sadly the smell of the lovely lamb stew set me off retching (that's vomiting when nothing comes up)! So I declined dinner but we did have a wonderful chat. After they had gone I managed to take my pills and to take in an episode of Doc Martin without ejecting anything!
I slept well and woke up in time to take my morning pills, vomit a bit and then have a welcome visit from Kate one of the District Nurses. She was amazing and explained that the vomiting was probably caused by my travelling and being in a different environment. She also explained that the large box of medicines, syringes and other medical kit I had come home with was "just in case" stuff for use by the District or Hospice Nursing teams. Amazing!
I manage a few sips of soup and a slice of buttered bread for lunch and kept it down, hurray! Then Malcolm Ball and his wife Julie came to visit and I had a wonderful two hours with Malcolm helping me to remember all the people we had worked with and some of the exciting challenges we had overcome! Tears filled my eyes as Malcolm thanked me for being a positive influence in his work at British Gas and I thanked him for introducing me to Emstar an introduction that helped me grow my consultancy business. Those were the days! I have been very blessed to have worked with some wonderful people.
If you did work with me or you know me and would like to remember some shared experiences and challenges do drop me a line. The best way is an old fashion e mail to ajec@hotmail,com Facebooks OK but I am not very good at it.
My dearest friend, how I wish I could be with you to visit. It's one in the morning here. No sleep as usual even the morphine, mst and liquid is not doing its job. So I took my elephants rightie and leftie for a stroll to the loo. No lovely white stockings at night. I feel so close yet so far from you my dearest friend. I know we are loved by our father in heaven and he will bring us together when the time is right. On a lighter note we are druggies together. Good old domperidon can work wonders even if I've not had a thing to eat for 3/4 days.cest la view. Love you my darling man. Love to Ros and all the family.
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