Sunday, 22 November 2015

Slowly going down hill

It's Sunday 22nd November and I'm lying in bed dictating to my son Gareth who has kindly offered to act as scribe. It's been a good weekend, yesterday I had visits from Jason, Rachel, Naomi and Lorraine. Today my son Gareth has babysat me so that Ros could get to church and he could let the district nurse in to reload my syringe driver. This afternoon I had my brother in law John Miller together with my son Stuart and Steve Faulkner from church visit. Steve came to give me the sacrament which was appreciated. I am finding it increasingly difficult to be out of bed because the change of orientation sets the pain off badly sometimes so much so that I end up vomiting. It's not all doom and gloom I do manage to smile and laugh occasionally. Also we do make a bit of progress yesterday Jason converted an old cardboard box into a blanket cradle to stop the blankets from pressing on my toenails causing bruising. Also my daughter Lorraine brought me a big V shapped pillow which helps support me in a more comfortable position. The district nurses continue to do their very best to support me and help me be comfortable. I still managed to enjoy the programmes on the BBC iPlayer. I particularly enjoy nature programmes and documentaries. Sometimes just for a brief period I am able to forget all my challenges and immerse myself in the programme. I apologise if this has been a boring post but I'm sorry that how it is dying can be a boring process. I just count my blessings that I am not lying in a burnt out basement somewhere waiting for relief that isn't going to come.

Saturday, 7 November 2015

It is a real challenge! Sadly not a reel one!

Since coming out of the hospice things have been a bit challenging with  pain and bilious attacks  so much so they have fitted me with the syringe driver again.  This means I get two visits a day from the  district nurses, one to load the syringe and the other to check it is working OK before I go to sleep. Rosalind is a star, as I needed some Oxcynorm in tablet form, she phoned round several pharmacy still she found one at New Addington with a stock. Hurray, it's good to know you have it.

Whilst Ros was out the door bell rang and I managed to get downstairs. It was Seth from church and he had arranged to visit Saturday pm.  We were able to catch up with each other's news till Ros joined us.  Seth brought good news, he had changed his job

Because it is getting quite painful for me to type on the tablet keyboard with my right hand and my left hand shakes a bit I have been experimenting with the voice recognition function. This has led to some hysterical text.  I will try to include some next time.